a banner of Nobody Left Behind--Disaster Preparedness for Persons with Mobility Impairments


The resources listed below are an excellent way to get acquainted with or increase your depth of knowledge of disaster preparedness and assistance for persons with disabilities. These items were compiled to compliment the work of personnel in the health, emergency management, response, disaster relief or disabilities fields. They can be secured with your computer curser.

For ease with browsing this page either scroll down or select one of these headings:

Invaluable Products From Our Center

University of Kansas, Research and Training Center on Independent Living. The Preparedness Lifestyle. How to Plan for Seasonal and Pandemic Flu and Other Emergencies for People with Disabilities (12-page checklist booklet). Click on the page above for the downloadable version of the booklet for sharing in your community.

University of Kansas, Research and Training Center on Independent Living.  Ready, Willing, & Able Internet Course. FREE two hour course for personnel in health, emergency managers, response, relief, and disability fields. It covers disability etiquette, terminology, and communication and assistance techniques during disasters to assist persons with sensory, physical and cognitive disabilities.  It is approved for CUE’s for Kansas nurses.  The following is to assist with taking this on-line course.

  Login into KSTRAIN at http://ks.train.org, if outside Kansas http://www.train.org and the course ID# 1010882.

  Helptool to login into Train system and course. (PDF)

  Navigation Instructions for Taking the Course (PDF)

  Computer Trouble Shooting Helptool (PDF)

University of Kansas. Nobody Left Behind: Disaster Do’s and Don’ts Checklist. Individual and Disaster Do’s and Don’ts Checklist Community Preparedness.  Prepared for and by Persons with Disabilities.

    a. Individual Preparedness (PDF)
    b. Community Preparedness (PDF)

I. American’s with Disabilities Act (ADA) and Other Laws as Pertaining to Disaster Preparedness for People with Disabilities

Access Board. Resources on Emergency Evacuation and Disaster Preparedness. http://www.access-board.gov/evac.htm  

American Association of People with Disabilities. (2006). U.S. Disability Law Covers Foreign Cruise Ships http://www.aapd.com/News/disability/coversship.html

Comstock, D. (2005). ADA Decision Heralds New Safety Thinking. Fire Chief. http://firechief.com/mag/firefighting-adadecision-heralds/index.html

Connecticut State Office of Protection and Advocacy for Persons with Disabilities. Emergency Shelter Accessibility Checklist an Assessment Tool for Emergency Management Staff and Volunteers. http://www.ct.gov/demhs/lib/demhs/emergmgmt/planningguides/emg_shelter_accessibility_checklist.pdf

Connecticut State Office of Protection and Advocacy for Persons with Disabilities.  Universal access and sheltering: Space and Floor Planning Considerations. http://www.ct.gov/demhs/lib/demhs/space__layout_considerations.pdf

Fadale, Anthony. Kansas ADA Coordinator. Memo and Outline on Guidance for Agencies during Emergency Management/COOP. a. Memo  b. Outline

Landmark Settlement Requires Accessible Evacuation Procedures at all Marshall’s Stores Nationwide. http://www.washlaw.org/news/releases/050405.htm

University of California, Berkley (2008). Americans with Disabilities Act (ADA) and Universal Design Resource.  http://www.lib.berkeley.edu/ENVI/ada.html

U.S. Department on Homeland Security, Interagency Coordinating Council on Emergency Preparedness and Individuals with Disabilities.  Disability Law: Know your Rights. http://www.disabilitypreparedness.gov/ppp/dislaw.htm

U.S. Department of Justice.

ADA Best Practices Tool Kit for State and Local Governments http://www.ada.gov/pcatoolkit/toolkitmain.htm

U.S. Department of Home Land Security, Interagency Coordinating Council on Emergency Preparedness and Individuals with Disabilities. (2006). Individuals with disabilities in emergency preparedness Executive Order 1334: Progress report. [report]. Washington, D.C. http://www.dhs.gov/xlibrary/assets/icc-0506-progressreport.pdf

II. Business Preparedness Plans for People with Disabilities

Hawthorne, Nan. Emergency Plans That Include Workers with Disabilitieswww.esight.org/view.cfm?x=364&ov_id=-1

National Fire Protection Agency (NFPA). Emergency Evacuation Planning Guide for People with Disabilities (search under disabilities for reports on persons with disabilities). http://www.nfpa.org/itemDetail.asp?categoryID=824&itemID=20919&

Secretary of Transportation.  Emergency Preparedness for People with Disabilities.

Batiste, Linda Carter and Beth Loy (2004). Employers’ Guide to Including Employees with Disabilities in Emergency Evacuation Plans.  www.jan.wvu.edu/media/emergency.html

FEMA and US Fire Administration. Emergency Procedures for Employees with Disabilities in Office Occupancies.

National Center on Emergency Planning for People with Disabilities. Checklist for Public and Private Organization for Planning for Individuals with Disabilities on the Job.

U.S. Department of Labor. (2005). Effective Emergency Preparedness Planning: Addressing the Needs of Employees with Disabilities. http://www.dol.gov/odep/pubs/fact/effective.htm

U.S. Equal Employment Opportunity Commission. Fact Sheet on Obtaining and Using Employee Medical Information as Part of Emergency Evacuation Procedures.

III. Clearinghouses on Emergency Management and Disabilities

American Association on Health and Disability (2008). Annotated Bibliography on Emergency Preparedness and Response for People with Disabilities. http://www.aahd.us/site/static/pdfs/bestPractices/EmergencyPrep2008.pdf

American Association of Persons with Disabilities. Emergency Preparedness and People with Disabilities: Guidelines, Plans, and Bibliography Resources.

HSD Public Policy and Research Institute Homeland Security. DEMIN, PPRI Disaster and Emergency Management Information Network, Data, and Web Based Bibliographic Information Sources. http://ccs.tamu.edu/homeland_security/

Disability.gov. Online Resources for Americans with Disabilities.

University of Colorado, Natural Hazard Center. Natural Hazards and Disasters
Information Resources Guide.

IV. Training/Education

Center for Disability and Special Needs Preparedness (DPC). Website: http://www.disabilitypreparedness.org/

V. Emergency Management Planning

new FEMA and DHS Office of Civil Rights and Civil Liberties. (2008). Interim Emergency Management Planning for Guide for Special Needs Populations. Version 1.0. Comprehensive Preparedness Guide (CPG) 301.

Centers for Disease Control and Prevention. Public Health Emergency Response Guide for State, Local, and Tribal Public Health Directors.http://www.bt.cdc.gov/planning/responseguide.asp

FEMA. Accommodating Individuals with Disabilities in the Provision of Disaster Mass Care, Housing, and Human Services Reference Guide. http://www.fema.gov/oer/reference/index.shtm

FEMA. (2001). FEMA Emergency Procedures: Special Equipment and Devices.  http://www.ican.com/news/fullpage.cfm?articleid=E778C428-9D78-4687-9B0777B461E3A4EF

National Organization on Disability. Guide on the Special Needs of People with Disabilities for Emergency Managers, Planners and Responders. http://www.nod.org/resources/PDFs/epiguide2005.pdf

Sorensen, Barbara Vogt. Oak Ridge National Laboratory Populations with Special Needshttp://emc.ornl.gov/EMCWeb/EMC/PDF/Population_Special_Needs.pdf

U.S. Equal Employment Opportunity Commission (2001). Fact Sheet on Obtaining and Using Employee Medical Information as Part of Emergency Evacuation Procedures. www.eeoc.gov/facts/evacuation.html

University of Arizona. Tips for First Responders. http://cdd.unm.edu/products/TipsForFirstResponders.htm

VI. Emergency Management Research and Disabilities

U.S. Department of Education (April 2008).  Emergency Management Research and People with Disabilities Resource Guide. http://www.ed.gov/rschstat/research/pubs/guide-emergency-management-pwd.pdf

VII. Individual Preparedness for Persons with Disabilities

Kailes, J. I. Emergency Evacuation Preparedness: Taking Responsibility for Your Safety. A Guide for People with Disabilities and Other Activity Limitation. http://www.cdihp.org/evacuation/toc.html

American Red Cross. Tips for Seniors and People with Disabilities. http://www.redcross.org/services/disaster/beprepared/mobileprogs.html

Disability Resources Monthly (DRM) Web watcher. Disaster Preparedness for Persons with Disabilities (also link to resources by state). http://www.disabilityresources.org/DISASTER.html

IN.Gov. Indiana Protection and Advocacy Services. 

ILRU. Disaster Preparedness for Persons with Disabilities Preparedness Checklist for Evacuation and Checklist For Staying in Place. http://www.disability911.com/

Kansas Disability Commission. Emergency Preparedness Information Network. http://www.kcdcinfo.com/index.asp?NID=56

National Organization on Disability (NOD) Emergency Preparedness Initiative. http://www.nod.org/index.cfm?fuseaction=Feature.showFeature&FeatureID=1539

Homeland Security.  Emergency Preparedness Plan for Disabled.

Krumpe, A. & White, E. (2207). Emergency Preparedness Toolkit for Persons with Disabilities. Virginia Commonwealth University and Virginal Leadership in Neurodevelopmental Disabilities. http://www.vcu.edu/partnership/PDF/Emergency Prep Toolkit FINAL April 2007.pdf

FEMA. Special Needs Specific Disaster Preparedness.

Disability Preparedness.gov. Personal Preparedness Planning.

National Organization on Disability. Disaster Readiness Tips for People with Disabilities.

U.S. Department of Transportation. Emergency Preparedness and Individuals with Disabilities.

American Physical Therapy Association. Reference Guide to Emergency Preparedness for People with Disabilities and Special Needs.http://www.apta.org/AM/Template.cfm?Section=

VIII. Mapping and/or Assessment of Disability Populations

BRFSS maps by state on disabilities http://apps.nccd.cdc.gov/gisbrfss/default.aspx

Kansas Commission on Disabilities. These are maps showing service areas for State agencies that are service providers for low income households, elderly, and people with
disabilities. http://www.kcdcinfo.com/index.asp?NID=59

Kansas Association of Local Health Departments and Kansas Department of Health and Environment. Kansas Vulnerable Populations Outreach: Special Needs Population Assessment Toolkit. http://pandemicpractices.org/practices/resource.do?resource-id=291&collaborating-id=15

National Organization on Disabilities (NOD). Emergency Preparedness Initiative. Interactive Map of Disability and Emergency Preparedness Resources. http://www.nod.org/EPIResources/interactive_map.html

National Association of State Directors of Mental Development Disabilities Services. Emergency Response Preparedness Self Assessment Instrument. http://www.rtc.umn.edu/erp/main/

University of South Carolina Hazards and Vulnerability Research Institute (November 2006). Social Vulnerability Maps and Data by Counties in Kansas. http://webra.cas.sc.edu/HVRI/SOVI_Access/

IX. Pandemic Planning (This section is not necessarily disability specific.)

American Public Health Association. Stockpile Campaign and Tool Kit.

American Nursing Association. (March 2008) Adapting Standards of Care under Extreme Conditions: Guidance for Professionals during Disaster, Pandemics, and Other Extreme Emergencies. http://www.nursingworld.org/MainMenuCategories/

Centers for Disease Control and Prevention. Pandemic Influenza Information for Health Professionals.   http://www.cdc.gov/flu/pandemic/healthprofessional.htm

new U.S. Department of Health and Human Services and Centers for Disease Control and Prevention. The Great Pandemic: The United States in 1918-1919. http://1918.pandemicflu.gov/index.htm

U.S. Department of Health and Human Services. An excellent resource to keep up to date with what is globally happening and for federal, state and local, personnel, workplace, school and medical planning:

X. Testimonials of Surviving Disasters and Recommendations for Policy Makers by People with Disabilities

California State Independent Living Council (2004). The Impact of 2003 Wildfires on People with Disabilities. (PDF)

Center for Independence of the Disabled in New York (2004). Lessons Learned From the World Trade Center Disaster: Emergency Preparedness for People with Disabilities in New York, September 2004. (PDF)

Deaf and Hearing Consumer Advocacy Network (2004). Emergency Preparedness and Emergency Communication Access Lessons Learned Since 9/11 and Recommendations http://www.nvrc.org/content.aspx?page=5138&section=5

Rooney, C. (2007). Nobody Left Behind: Consumer Experiences of Emergency and Disaster. Impact. http://www.ici.umn.edu/products/impact/201/over4.html

Rooney, C. and G.W. White.  2007. Consumer Perspective: A Narrative Analysis of a Disaster Preparedness and Emergency Response Survey from Persons with Mobility Impairments. Journal of Disability Policy Studies, 17: 206-215. http://www.nobodyleftbehind2.org/~rrtcpbs/findings/journal07.shtml

White, G. W., M.H. Fox, C. Rooney and A. Cahill. 2007. Assessing the Impact of Hurricane Katrina on Persons with Disabilities. Lawrence, KS: The University of Kansas, The Research and Training Center on Independent Living.  http://www.rtcil.org/products/NIDRR_FinalKatrinaReport.pdf.

XI.  Communications

Federal Communications Commission.
Guidelines for Emergency Planning (Business)
Pandemics Guide
State Emergency Management Offices

XII.  Registries for Vulnerable Populations

new Reno County, Kansas Introduces Special Needs Registration and Preparedness Program. Press Release Flyer

new State of Texas Registry and Evacuation Systems

State of Texas Deploys Special Needs Evacuation Tracking System. http://www.motorola.com/governmentandenterprise/contentdir/en_US/Files/CaseStudies/SNETSCaseStudy.pdf

211 Texas United Way Helpline Assists with Special Needs Registry. http://www.harriscountycitizencorps.com/newsletters/June2006Newsletter.pdf

Prepared by:
Module C Emergency Preparedness for People with Disabilities Workgroup
University of Kansas Research and Training Center on Independent Living and
Kansas Department of Health and Environment
Grant funded by Centers for Disease Control and Prevention


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